Innovation Exchange

Showing all projects in the category: Patient and Public Involvement.

Young People in Research

Doing research with children can help us understand what children think about the issues that are affecting them. But any research with children must balance the aims of the research with the safety and wellbeing of the participants. By providing the right support and knowing when to take appropriate action, researchers can ensure that children feel respected and […]

Read more

Public Involvement in Musculoskeletal Services (PIMS)

PIMS is a group of patients and carers that meet quarterly to discuss research and service improvement issues in the Musculoskeletal Department at the Freeman Hospital. The advantages of a group such as PIMS is that their long term involvement means that group members are familiar with other issues within the department and are therefore able to consider research […]

Read more

A Healthy Volunteer

Irene Soulsby discovered taking part in research “quite by accident”. Diagnosed with breast cancer in 2003, Irene agreed to donate tissue excised during surgery to research; this was the beginning of Irene’s ‘research career’! A Healthy Volunteer – Irene Soulsby

Read more

The Participation and Health Improvement of Children and Young People with Type 1 Diabetes

The UK has the fifth largest population of children and young people with Type 1 diabetes in the world and the North East has one of the highest populations in England. There are particular concerns relating to the care of young people with Type 1 diabetes, the complications of which often leads to them failing […]

Read more

Supporting Patients and Healthcare Staff to Improve Patient Safety: Developing an Implementation Package for ThinkSAFE

Approximately 10% of hospital patients are harmed by the care they receive, leading to many approaches to improving safety, including an international emphasis on patient involvement. Within a previous research programme the project group developed ThinkSAFE, a user-informed robust approach supporting patient and family involvement in improving in-patient safety. To support broad, effective and rapid […]

Read more

Enhancing domiciliary care provision for people living with neurological conditions in the North East

There are many people living with neurological conditions in the North East ranging from Parkinson’s disease to stroke, from multiple sclerosis to brain injury as well as migraine, muscular dystrophy and autism. The impact of neurological conditions on the individual and their family is significant and leads to enormous life style changes and frequently financial […]

Read more

Loss in Multiple Pregnancies Support Toolkit

This project translates the results of a recent research study into a professional resource toolkit for neonatal staff dealing with parents who experience loss from a multiple pregnancy. There is a very specific set of issues for parents who have lost a baby from a multiple pregnancy who may find themselves supporting a living sibling whilst […]

Read more

Validating a Regional Model of Familial Hypercholesterolaemia Diagnostic and Cascade Testing

Hypercholesterolaemia is a genetic disorder characterised by high levels of low density lipoprotein cholesterol, causing premature cardiovascular disease.  This project will see the development of an adaptive regional genetic diagnostic testing service for Familiar Hypercholesterolaemia through the validation and optimisation of a “chip and sequence” approach to DNA diagnosis.  As an output of the project, […]

Read more

Better COPD Care – A COPD Coordinator Role as a Catalyst for Multi-CCG Innovation, Dissemination Wealth Creation and Guideline compliant care

Chronic Obstructive Pulmonary Disease (COPD) is a major cause of preventable hospital admissions across the North East and North Cumbria region and there are significant variations within the regions in access to best COPD care. This project will roll out interventions in Newcastle-Gateshead CCG alliance footprint that are recognised as cost effective in NICE 2010 […]

Read more