Electronic Palliative Care Co-ordination System: EPaCCs

At present, there is no system in place to ensure that all health care providers can access ‘End of Life’ information. A patient may have informed their GP of their end of life care wishes, but many GP practices are only open for 30-35% of the week. It is vital that information about a person’s wishes can be made available to all healthcare providers at all times, including out of hours’ providers, the ambulance service, acute hospitals and palliative care teams.

This project aims to:

  • Enable clinicians in all organisations to have access to the same vital information on end of life patients, so that the patient’s wishes are respected even when they are too poorly to communicate those wishes.
  • Provide better coordinated care for people who are at the end of their life.
  • Allow more people able to die in their place of choice.
  • Reduce inappropriate hospital admissions at the end of life and consequently reduced number deaths occurring in hospital.

This project originally planned to enhance the Summary Care Record (SCR) – the basic summary of a patient’s medical information – to additionally include information about long term conditions and ‘End of life’ care decisions.

Whilst significant progress was made, it became clear that the Enhanced SCR was to be replaced by a Medical Interoperability Gateway (MIG) system as the ‘records sharing solution’ in North Tyneside. The MIG allows acute trusts and other healthcare services to view primary care records and a summary of care within them. Nevertheless, the learning from the original project is now facilitating the development of an EPaCCs system within the MIG.

Project Resources

Electronic Palliative Care Co-ordination System: EPaCCs

(case study uploaded 1st December 2016)

PowerPoint From November 2014 Workshop

PowerPoint from September 2015 Workshop

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